Brave Seanin hails support
Tuesday, 19 August 2014
Seanin Smith, the 22-year-old from Belleeks, who is suffering from a rare genetic disorder has said the support she has received as "overwhelming".
The Fight On Campaign for Seanin was set up in March this year to help raise funds for the treatment of the former Belle of south Armagh.
“I am really grateful to everyone who has taken time out to attend the events and helped in any way. I am totally overwhelmed by all the support, generosity and kind words and messages that I have received from all parts of the country," said Seanin.
Seanin has been diagnosed with Ehlers Danlos Syndrome (EDS), a genetic connective tissue disorder of the collagen.
The six main types of EDS can affect individuals in different ways depending on which of the types of collagen are affected and in what part of the body. Although each individual can experience varying degrees of symptoms, joint and skin related issues are the most prominent. There are over 200 people living with EDS in the North of Ireland. Although many of them look incredibly healthy, the reality is, day-to-day life is a struggle. There are many more people going through life undiagnosed, desperate for answers. Very few doctors in this country have heard of EDS and there is little or no help available here.
The Fight On Campaign for Seanin also aims to raise awareness of this condition in order to help individuals get the help and support they need.
Since March, the small village of Belleeks has seen everything from tractors and trucks to cakes and marathon runners. There's been raffles, coffee mornings, bucket collections, balloon releases, fun days, sky dives, abseiling and hunks.
Seanin's sister Louise adds : "We can't thank people enough, the money raised is going to go a long way in helping Seanin."
There are lots of events coming up over the next few months. See the social media pages or the website http://www.fightoncampaign.com/ for more information. If anyone would like to host an event in aid of The Fight On Campaign for Seanin please contact the committee through the social media sites or email firstname.lastname@example.org.
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